It is with a heavy heart that I say, my love passed away this morning. May he rest, in peace.
Love to All
Us

Just a short post, Bo is resting at home now surrounded by love.
I think for the first time I am at a loss for words.
We are not sure how much time we will have together in this next phase, selfishly I want another 3 1/2 years, but I do know better. I want no suffering, no pain. I want Bo to do this his way on his time. We will all ride this ride together, celebrate his life and journey.
I also want to thank everyone for his kind words. Not for just right now, but for me to share with Addi in the future. With your comments, letters mailed and pictures I hope to create a volume of books for her to have forever celebrating her Daddy. (I hope you get the hint, that if you have anything you would like to share about Bo, with Bo or pictures, I would love to have some) Everyone of you, people me have met and people we have not met, are special to us. We talked many times about this blog and how grateful we are to have it. Our toughest days were sustained many times because of words said on this website. Thank you.
Thank you for sharing our life with us and this journey.
Love to All
Christi, Bo and Addi
PS - I guess I did have enough to say after all - Always me

Hello to All - You might guess from my delay that I do not want to type this post. I hope we can count on everyone to walk our new path with us, with love, respect and the dignity Bo deserves. Our wonderful friends and doctors came down to give us some analysis and help our decision process. With their input we have decided that Bo isn't able to continue any more treatments. At this time it might do more harm than good. So now we will start the next phase in our journey together. Bo will chose how to live his life to the fullest.
Tomorrow Bo will come home and we will have assistance in making him comfortable. I ask that you give us time to get him comfortable. I ask for time for us to adjust to our path of living life as Bo chooses. I know you all love him almost as much as I do, so we want you to come and celebrate our journey with us, but I am going to be selfish and cherish as much time as I can with him as well. I will post when we can have visitors, but please be aware that Bo cannot time your visit and he might be resting or only able to talk for 5 minutes.
I know the next question is time, how much time do we have...once again I have no answer to that. No magic crystal ball. We have now and that is more than some people will get. I think coming sooner rather than later is always best because we never know what the future will hold.
I want to thank everyone for their love and support. Our journey together is not done, I hope will never be done. I know Bo is as special to you as me.
Tonight we were watching the Jimmy V Classic and Dr. Crawford asked Bo if he remember what Jimmy V's famous saying was, Bo with his quick wit said, "Go Tarheels", hehehe, Actually is was "Never Give Up, Never Give Up," and that is what we will do.
Love to All
Christi, Bo and Addi

Hello I just wanted to let everyone know the time frame will not be until late tonight. Dr. Crawford and Susan and traveling after work to come here to be with us. I can only imagine how many times refresh gets hit when you are waiting for news. (You all taught me during transplant) So I am learning.
Bo has been resting most of the day. We are trying medicine to get fluids off him, we just started those and it will probably take 24 hours to know if they are working.
I will post when I can tonight, I am just trying to figure out how to juggle Addi and the late not Dr. visit. I have been trying to be home for most breakfast and dinner meals, so tonight might be an exception.
Love to All
Christi, Bo and Addi
Don't hit refresh until later :)

I apologize for just now posting, no computer and I have been spending as much time as possible with Bo and Addi. Today was a quiet day, we have a great doctor here that is more than willing to let Dr. Crawford call the shots. He is constantly in contact with them. With that being said Dr. Crawford and Susan are coming down tomorrow from Duke to put "eyes" on him and assess the situation from people that have seen him through his battle for 3 1/2 years. I also know that they probably understand that I cannot move through this process without differing to them some way. I value their input and help guidance from them will give us all confidence in decisions being made.
Bo has improved kidney function today, so our decision to keep hydrating him was a good one. He still has a long way to go to have normal function and everyday is a new day, but as we have learned before, stable is good. Bo has other complications as well right now, some minor and some not so minor that we will need to address also. One day at a time, one step at a time. As for now though the prayers for improved kidney function are working, now we also need to pray for reduction of fluid in his 3rd space. (Which, dumb downed for Christi means, swelling in his legs and abdomen) This is tricky because most meds they would use to relieve this are hard on your kidneys, so we wait and try to make Bo comfortable with pain meds until we can decide what to do.
Thank you all for your wonderful support and especially all the love to our entire family. I am extremely grateful to everyone and the kids helping to distract Addi so I can be here as much as possible. We can feel the love and support. I also know it is hard not to come and hug us all here, but thank you for respecting our need to handle Bo delicately right now with no visitors. He exhausts easy and if I know him, he would want everyone to come in and chat for a couple hours. Just know we tell him everyone is thinking about him and he knows he is loved, never doubt that.
I promise will do better keeping everyone informed, I just need to remember to keep a computer handy.
Love to All
Christi, Bo and Addi
PS - Sorry for all the typos, when my posts are long I have a hard time going back to correct my typing and grammar...

Hello - Just a quick note. We are still in the hospital getting fluids. They doctors should make their rounds late this afternoon and maybe we will have an idea of what the next step it.
His kidneys have minimal output right now, but sometimes it takes 24 hours to see how things are progressing.
Please keep praying.
Love to All
Christi, Addi and Bo

Hello to All - It it with an extremely heavy and worried heart that I type this to you all. I do understand this is going to be a shock to everyone, as me and the family as well, Bo's body has taken a dramatic turn in the last 48 hours. Addi and I returned early to Bo with him considerably, fatigued, confused and bloated. We spent the night with him to bring him to the emergency roon early this morning.
It appears that Bo's kidneys are struggling and potentially shutting down. This could be due to dehydration, so we are getting fluids now in hopes they will start working again. The next 24-48 hours are critical. Please if you have a moment to say a prayer, please pray Bo's kidneys get working better and that we can get him to chemo.
I am in constant communication with the Duke doctors and everything possible that could be done is being done.
I will try my best for myself or someone else to keep you updated.
Love to All
Christi, Addi and Bo
At this time all we ask for is prayers and as help is needed I promise we will ask for help. For now please no visitors, we are hoping rest and quiet will help.

Hello to All - and Happy Thanksgiving!
I type this a little freaked out. Originally we had planned to visit my family in Kansas for the first time at Thanksgiving (Bo has to see the craziness of my Mother), but Bo really isn't feeling well enough to fly. He has developed a new, painful clot, in his leg which makes walking hard and well, painful. So he is insisting that Addi and I go on to Kansas. Don't get me wrong I am excited to see everyone in Kansas, I just fear that I will be so stressed out about Bo that it will be hard to enjoy myself. (As I keep talking to myself) I know that Bo is in wonderful hands and everyone with spare time will be checking in on him, I just don't want to leave him. I think this is the longest time in our 3 1/2 year battle I will not see him. Enough boo-hooing, I will have fun, try to rest, (botox these wrinkles out before I come home, right...)put on another 10 lbs compared to all the pasta and carbs I am making Bo and let Addi ride Papa Cow's, Cows and Horses.
Everyone have a wonderful Thanksgiving and if you are local to us, please check on Bo. We are hoping we can get up to Duke soon for chemo, we just need to fatten him up some more.
Love to All
Christi, Bo and Addi